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Privacy Policy

Introduction

The Leandro P. Rizzuto Foundation ("Foundation" or "We") respects your privacy and is committed to protecting it through our compliance with this policy.

This policy describes the types of information we may collect from you or that you may provide when you visit the website: www.alsfindingacure.org (our "Website") or use any services offered or provided through or in connection with the Website, and our practices for collecting, using, maintaining, protecting and disclosing that information. Generally, we do not collect information that personally identifies individuals except when individuals knowingly and voluntarily provide such information to us. For example, we will gather information about individuals when they submit comments, questions or requests for information to us on this Website.

We use information we receive to operate and improve the content of this Website, and to provide the service(s) or information, or carry out the transaction(s) that you have requested or authorized. We may share any of the information we gather on our Website or otherwise maintain with our affiliates and service providers.

This policy does not apply to information collected by:

  • us offline or through any other means, including on any other website operated by Foundation or any third party (including our affiliates and subsidiaries); or
  • any third party (including our affiliates and subsidiaries), including through any application or content (including advertising) that may link to or be accessible from or on the Website. Please read this policy carefully to understand our policies and practices regarding your information and how we will treat it. If you do not agree with our policies and practices, your choice is not to use our Website. By accessing or using this Website, you agree to this privacy policy. This policy may change from time to time.

Your continued use of this Website after we make changes is deemed to be acceptance of those changes, so please check the policy periodically for updates.

Information We Collect About You and How We Collect It

Information collected automatically as you navigate this website may include usage details, IP addresses and information collected through cookies, web beacons and other tracking technologies. A cookie is a piece of data stored on the user's hard drive containing information about the user. Our Website employs cookies, but will not use cookies to obtain data from your hard drive. Cookies enable us to track and target the interests of our users to enhance the experience on our Website.

Users can set their browsers or third-party software to reject cookies. If you reject the cookie, you may be unable to use portions of our Website that require registration, some pages of the Website might not function properly, and the Website experience will not be capable of being tailored to you from visit to visit.

Please consult your web browser's Help documentation for more information about how to turn cookies on and off for your browser. Cookies are placed on your computer, and accordingly we neither store cookies on our computers nor forward them to any external parties.

Certain pages of this Website and promotional e-mail messages or newsletters we send may contain electronic images known as Web beacons – sometimes called single-pixel gifs – that allow us to count users who have visited those pages and to determine whether messages have been opened and acted upon. Some of these Web beacons may be placed by third-party service providers to help determine the effectiveness of our advertising campaigns or e-mail communications. These Web beacons may be used by these service providers to place a persistent cookie on your computer. Doing this allows the service provider to recognize your computer each time you visit certain pages or e-mails and compile anonymous information in relation to those page views. These third parties are not permitted to use Web beacons to collect or access your personal information. However, we do not undertake to confirm, investigate, or police their practices.

We use IP addresses and web server log files, and information we receive through the use of cookies and Web beacons to analyze trends, administer this Website, track users' movement, and gather broad demographic information for aggregate use. Information of this type may be combined with other sources of information for these purposes. Specifically, through the use of web server log files any or all of the following information may be accessed, collected, analyzed and stored during or after your visits to our Website: the name of the domain from which you access the internet; the date and time you access our Website; the pages that you visit on our Website and the sequence in which you visit them; the amount of time that you spend on any given page of our Website; the internet address of a Website that you visited immediately before visiting our Website; the internet address of a Website from which you linked directly to our Website, if any; the internet address of a Website that you visit immediately after leaving our Website; the type of operating system on your computer; and the type of browser that you are using to view a Website.

  • Details of donations you carry out through our Website.
  • Your search queries on the Website.
  • We also collect personally identifiable information in the following ways and for the following purposes:

Electronic Mail: The Leandro P. Rizzuto Foundation may retain the content of any e-mail that it receives, the e-mail address from which it is sent, and our response. Content and other information in or related to e-mails sent by you to The Leandro P. Rizzuto Foundation may be used in accordance with the Terms and Conditions of this Website. Please be aware that when you receive a receipt acknowledging your e-mail, it means that the message or form has been routed into the internet, and not that it has been received by us.

Children Under the Age of 13

Our Website is not intended for children under 13 years of age. No one under age 13 may provide any information to the Website. We do not knowingly collect personal information from children under 13. If you are under 13, do not use or provide any information on this Website or on or through any of its features/register on the Website, make any donations through the Website, use any of the interactive or public comment features of this Website or provide any information about yourself to us, including your name, address, telephone number, e-mail address or any screen name or user name you may use. If we learn we have collected or received personal information from a child under 13 without verification of parental consent, we will delete that information.

How We Use Your Information

We use information that we collect about you or that you provide to us, including any personal information:

  • To present our Website and its contents to you.
  • To provide you with information or services that you request from us.
  • To provide you with notices about your donation.
  • To notify you about changes to our Website or any services we offer or provide though it.
  • In any other way we may describe when you provide the information.
  • For any other purpose with your consent.

Disclosure of Your Information

We may disclose aggregated information about our users, and information that does not identify any individual, without restriction:

  • To our subsidiaries and affiliates.
  • To contractors, service providers and other third parties we use to operate our Website or support our non-profit organization and who are bound by contractual obligations to keep personal information confidential and use it only for the purposes for which we disclose it to them.
  • To fulfill the purpose for which you provide it. For any other purpose disclosed by us when you provide the information.
  • With your consent.

We may also disclose your personal information:

  • To comply with any court order, law or legal process, including to respond to any government or regulatory request.
  • To enforce or apply our terms and conditions.
  • If we believe disclosure is necessary or appropriate to protect the rights, property, or safety of the Foundation or others.

Your Information and Opting-Out

If you do not wish to receive periodic mailings or e-mails, or telephone contact concerning our Website, our services, and/or upcoming events, you may opt-out of receiving such marketing or promotional communications by sending us a written request to the address listed below.

Data Security

All information you provide to us is stored on our secure servers behind firewalls. Any donations made are handled through our PayPal account and are subject to their privacy policies, terms and conditions.

Unfortunately, the transmission of information via the internet is not completely secure. Although we do our best to protect your personal information, we cannot guarantee the security of your personal information transmitted to our Website. Any transmission of personal information is at your own risk. We are not responsible for circumvention of any privacy settings or security measures contained on the Website.

Changes to Our Privacy Policy

It is our policy to post any changes we make to our privacy policy on this page with a notice that the privacy policy has been updated on the Website homepage. If we make material changes to how we treat our users' personal information, we will notify you through a notice on the Website homepage. The date the privacy policy was last revised is identified at the top of the page. You are responsible for periodically visiting our Website and this privacy policy to check for any changes.

Contact Information

To ask questions or comment about this privacy policy and our privacy practices, contact us at:

Leandro P. Rizzuto Foundation
c/o Chris Collins, Administrator
1 Cummings Point Road
Stamford, CT 06902

Contact Us

A Program Of

Advisory Board

  • Leandro P. Rizzuto
  • Peter N. Foss
  • Merit  Cudkowicz, MD
  • Denis  Rizzuto
  • Stanley H. Appel, MD
  • Robert  Brown, D.Phil., MD
  • Tom  Gentile
  • Clive  Svendsen, PhD
  • Richard  Ellenbogen, MD
  • Randy  Fishman
  • Edward J. Rapp
  • Sudha  Maniam