For Patients: Online Resources

If you’re newly diagnosed and feeling overwhelmed, or have had ALS for a while, we’ve gathered accurate and easy to understand information to help you from several trusted resources below.

The ALS Association (ALSA)

The mission of The ALS Association is to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

Aviators Against ALS

Aviators Against ALS is a mission-driven organization in the fight against ALS. We are a group of airline or former airline professionals who either have ALS, have loved ones with ALS or are allies of those impacted.

Compassionate Care (CCALS)

CCALS is a nonprofit organization with a mission to support people diagnosed with ALS, their families, healthcare providers, and communities as they navigate the complexities, both physical and emotional, associated with the disease.

Everything ALS

EverythingALS is a patient-focused non-profit, bringing technological innovations and data science to support efforts — from care to cure — for people with ALS.


I AM ALS is revolutionizing how we cure ALS by empowering and mobilizing patients, engaging with policy-makers and offering vital resources for people impacted by ALS.

Muscular Dystrophy Association

We’re here to transform the lives of people affected by neuromuscular disease.

The Les Turner ALS Foundation

Provide care for those affected by ALS, answer their questions, support their loved ones and provide hope through scientific research.

Your ALS Guide

Provide new ALS content in collaboration with ALS professionals across the country.