Compassionate Care ALS (CCALS) Compassionate Care ALS (CCALS), a nonprofit located in Falmouth, Massachusetts, currently works with more than 1,050 ALS families in 47 states and multiple foreign countries. Funding from ALSFAC WE CARE will allow CCALS to grow its staff to serve more ALS patients their families, communities, and healthcare providers. We will provide resources including equipment, educational opportunities, Medicare/Medicaid assistance, communication assistance, guidance and awareness with regards to living with ALS, caregiving, and exploring end-of-life when invited, all at no cost to families across the United States.
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ALS Ride for Life: Mobility Matters Program As a patient-driven, primarily volunteer organization, the mission of ALS Ride For Life is to serve the ALS community by assisting patients and their families through a variety of supportive services to ease the financial and emotional stress this disease places on families, raising research funds to find a cure, raising public awareness, and providing the community with the latest ALS news, information, and inspiration. With a minimal staff (the equivalent of 2 employees), an active board of directors, and a team of volunteers. To apply for our Mobility Matters Program or [...]
ALS Finding a Cure Request for Proposals To Develop and Validate ALS Organoid Models Overview: Organoids are a powerful new and compelling technology for studying disease biology. Several different and complementary organoid models currently exist with relevance to ALS, but none of these models has been tested across multiple ALS iPSC lines, and all have been created using different lines/genetic backgrounds making comparisons between/among them challenging. The reagents and assays used to assess ALS phenotypes have likewise varied. This variability and limited scale make it challenging to interpret results and to establish methodologic robustness. This targeted RFP aims to [...]
ALS Finding a Cure and The ALS Association Partner to Reduce Time to Initial ALS Diagnosis Organizations Commit $2M towards New International ALS Diagnostics Effort Boston, MA., Washington, D.C., and Palm Beach, FL (August 16, 2023) — ALS Finding a Cure® (ALSFAC) and The ALS Association have awarded seven new grants worth a total of $2 million to support the development of early diagnostics for ALS. More than 150 years after the disease was first defined, there are currently no universally accepted diagnostic approaches for ALS. In order to receive an ALS diagnosis, patients must first undergo a battery [...]
Bridging Voice Bridging Voice is a non-profit that provides communication technology support to people with ALS at all stages. To date our team has supported over 1,500 pALS in 49 states and 12 countries. We strive to provide innovative solutions, continued communication, improved quality of life, and hope to the larger ALS community. Funding from ALSFAC will enable Bridging Voice to expand programs that give people with ALS (pALS) the ability to continue to communicate with their family, friends and caregivers. Bridging Voice will provide the education, training and technical support to ensure pALS are always able to communicate [...]
Matt’s Place Foundation Matt’s Place Foundation: “ Hope & Housing ALS Renovation Series” Matt’s Place Foundation(MPF) is a 501(c)(3) charitable organization run 100% by volunteers to assist pALS (People with ALS) and their families, as they navigate learning to live with this disease. Its ultimate intention is to provide hope, housing, and assistance to families dealing with ALS. MPF helps families diagnosed with Amyotrophic Lateral Sclerosis (ALS) by providing grants and support with some of the more expensive costs that are not covered through insurance, such as accessible exterior ramps, accessible bathroom remodeling costs, and rent/mortgage assistance. The foundation [...]
ALS Ride For Life ALS Ride For Life (ALSRFL) is a non-profit located in Stony Brook, New York. ALSRFL was founded 26 years ago by Chris Pendergast. When Chris was diagnosed with ALS he decided he wanted to be part of the solution and ALSRFL was founded. Chris quickly realized patients needed a wheel-chair accessible van to get to much needed doctor appointments and to attend family events. He started lending out his personal van. As the demand grow, ALSRFL started its Mobility Matters Program. This program is the only one of its kind serving Long Island the NYC [...]
Mobility for All Team Gleason has provided over $20 Million in adventure, technology, equipment, and care services to over 30,000 people living with Amyotrophic Lateral Sclerosis (ALS) and countless others through advocacy, support, and, ultimately, bringing an end to the disease. Team Gleason, through its diverse and broad-reaching programming, brings assistive technology, equipment, and robust support services into the hands of ALS patients – with a goal of helping people with ALS not just survive but thrive after a devastating diagnosis. With the support and partnership from the ALS Finding a Cure and the Leonard P. Rizzuto Foundation, Team Gleason will have the [...]
ALSFAC We Care 2021 Grants Click below to learn about our inaugural award recipients: Hark-ALS A Nationwide Network of Compassionate and Financial Resources for Families Living with ALS. Read More Compassionate Care ALS Sustainable Growth for ALS Care in the United States. Read More Massachusetts General Hospital Expanding the ALS Parenting At a Challenging Time (ALS PACT) Program with web-based resources for parents and providers. Read More Penn Medicine Respiratory Care for ALS: The North American ALSFAC We Care Online Cource for Clinicians Read More [...]
ALS Finding a Cure Call for Proposals in Early Diagnostics Shockingly, more than 150 years after the disease was first defined, there are currently no universally accepted diagnostic approaches for ALS. In order to receive an ALS diagnosis patients must first undergo a battery of tests designed to rule out other diagnoses. This is highly problematic because it can take a year for an ALS patient to receive the correct diagnosis (and sometimes even longer). While these individuals are searching for a name for their affliction, they are frequently bounced to multiple doctors, can receive unnecessary (and expensive) surgical procedures and [...]