Team Gleason Enhancing Access and Continuity of Care for People Living With ALS Team Gleason has provided over $20 Million in adventure, technology, equipment, and care services to over 30,000 people living with Amyotrophic Lateral Sclerosis (ALS) and countless others through advocacy, support, and, ultimately, bringing an end to the disease. Team Gleason, through its diverse and broad-reaching programming, brings assistive technology, equipment, and robust support services into the hands of ALS patients – with a goal of helping people with ALS not just survive but thrive after a devastating diagnosis. With the support and partnership from the [...]

Hark-ALS A Nationwide Network of Compassionate and Financial Resources for Families Living with ALS In 2009 I watched my dad slowly lose his ability to walk, talk, swallow, and breathe before taking his last breath 18 months after being diagnosed with ALS (Lou Gehrig’s Disease). I’m one of 7 children, and my dad was a veteran, so we had all we needed to take care of him at home. Not long after my dad passed, a good friend’s husband was diagnosed with ALS; by the time he passed away, she was financially devastated. My first thought was, “How [...]

Compassionate Care ALS (CCALS) Growth for ALS Care in the United States Compassionate Care ALS (CCALS), a nonprofit located in Falmouth, Massachusetts, currently works with more than 1,500 ALS families in all 50 states and multiple foreign countries. CCALS provides resources including equipment, educational opportunities, Medicare assistance, communication assistance, guidance and awareness with regards to living with ALS, caregiving, and exploring end-of-life when invited, all at no cost to families across the United States. Funding from ALSFAC WE CARE will allow CCALS to provide Glide Care G-5 Lightweight Foldable Electric Wheelchair to many more families than we currently [...]

ALS Ride for Life Mobility Matters Program ALS Ride For Life was built on one powerful belief: no one should face ALS alone. What began as a small, community-driven effort has grown into a movement fueled by compassion, connection, and an unwavering commitment to those impacted by this devastating disease. Behind every ALS diagnosis is a person with a story, a family navigating the unimaginable, and a future suddenly filled with uncertainty. ALS Ride For Life exists to stand beside them—raising critical funds for research, increasing awareness, and providing meaningful support to patients and their loved ones. At [...]

ALS ONE - United in ALS Research, Care, and Community Our Pals for pALS Community Connect Program One of the greatest wishes of our founder, Kevin Gosnell, after launching ALS ONE and united research and care—and before losing his battle to ALS just 14 months after his diagnosis—was to build a compassionate, connected community for those impacted by the disease. He envisioned a network where individuals living with ALS, those who had lost loved ones, and supporters could come together to uplift one another, easing the journey with shared understanding, support, and even moments of joy. Our Pals [...]

Hope Loves Company Hope Loves Company (HLC) is a nationally recognized nonprofit that provides support, resources and community to children who have or had a loved one with ALS. We give children and young adult caregivers the tools they need to navigate grief, find joy, and remain hopeful. Recognizing a gap in support services for young caregivers, Jodi O'Donnell Ames founded HLC to provide critical emotional and educational resources for children and young adults. HLC's focus is to offer mental health and educational support and caregiving resources through free, year-round, nationwide programs, including Camp HLC, Hugs of Hope, [...]