Arrest ALS In collaboration with the ALS Association, we are pleased to announce the recent funding of four new grants designed to elucidate the biological linkages between key drivers of active axonal degeneration and ALS. ALS Finding a Cure® and the ALS Association are pleased to further scientific advances in this important area of research, which are sure to lead to future therapeutic insights. The four projects funded through the Arrest ALS collaboration include: Bloom/DiAntonio submission (Washington University in St. Louis): Pathological aggregation of the protein TDP-43 within motor neurons is seen in the majority of ALS cases (sporadic [...]
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ALS Scholars in Therapeutics: Request for Applicants Please forward the announcement below to your network of clinical and basic researchers. Due date for nominations is April 29, 2022 The Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital (MGH) in partnership with ALS Finding a Cure® (ALSFAC) and FightMND is issuing a request for applications for the ALS Scholars in Therapeutics Program to empower young investigators to learn how to develop new treatments for people living with ALS. Full announcement can be found here. This two-year program is designed to engage clinician-scientists and post-doctoral fellows to gain training and experience in therapy [...]
Motor neuron toxin associated with ALS identified by UMass Chan investigators An international team of investigators has discovered that an inorganic polyphosphate released by nerve cells known as astrocytes in people with amyotrophic lateral sclerosis (ALS) and frontotemporal dementia (FTD) contributes to the motor neuron death that is the signature of these diseases. The research, by Brigitte van Zundert, PhD, adjunct professor of neurology at UMass Chan and professor at the Universidad Andres Bello in Chile; Robert H. Brown Jr., DPhil, MD, professor of neurology, and colleagues appears this week in Neuron.
Penn Medicine: Respiratory Care for ALS: The North American ALSFAC We Care Online Cource for CliniciansAnne D Pham2021-12-14T17:37:20+00:00
Penn Medicine: Respiratory Care for ALS: The North American ALSFAC We Care Online Cource for Clinicians Until the recent past, virtually everyone with amyotrophic lateral sclerosis (ALS) lost their breath as the paralyzing disease progressed. Most have died after 2 to 5 years of respiratory failure. However, extraordinary recent advances in respiratory care now enable many people with ALS to breathe comfortably and securely with the assistance of noninvasive (mask) ventilation throughout the course of their disease. Expertly managed noninvasive ventilation also prolongs survival and improves quality of life. Today, noninvasive ventilation remains the only therapy for ALS [...]
Hark-ALS: A Nationwide Network of Compassionate and Financial Resources for Families Living with ALSAnne D Pham2021-12-14T17:30:44+00:00
Hark-ALS: A Nationwide Network of Compassionate and Financial Resources for Families Living with ALS In 2009 I watched my dad slowly lose his ability to walk, talk, swallow and breathe before taking his last breath 18 months after being diagnosed with ALS (Lou Gehrig’s Disease). I’m one of 7 children and my dad was a veteran so we had all we needed to take care of him at home. Not long after my dad passed a good friend's husband was diagnosed with ALS; by the time he passed away she was financially devastated. My first thought was, “How [...]
Compassionate Care ALS: Sustainable Growth for ALS Care in the United States Compassionate Care ALS (CCALS), a nonprofit located in Falmouth, Massachusetts, currently works with more than 860 ALS families in 42 states and multiple foreign countries. Funding from ALSFAC WE CARE will allow CCALS to grow its staff to serve more ALS patients their families, communities, and healthcare providers. We will provide resources including equipment, educational opportunities, Medicare/Medicaid assistance, communication assistance, guidance and awareness with regards to living with ALS, caregiving, and exploring end-of-life when invited, all at no cost to families across the United States.
Massachusetts General Hospital: Expanding the ALS Parenting at a Challenging Time (ALS PACT) Program with Web-based Resources for Parents and ProvidersAnne D Pham2021-12-14T17:35:13+00:00
Massachusetts General Hospital: Expanding the ALS Parenting at a Challenging Time (ALS PACT) Program with Web-based Resources for Parents and Providers Many people coping with ALS live with, or care for, children or grandchildren. When confronted with a disease as difficult to navigate as ALS, many parents understandably struggle with knowing how best to support their children (or grandchildren) and accessing resources tailored to their needs. The ALS Parenting At a Challenging Time (ALS PACT) Program at Massachusetts General Hospital’s ALS Multidisciplinary Clinic has been designed to build on family strengths and help parents to support their children’s [...]
Denis Rizzuto Denis Rizzuto graduated from the University of Bridgeport with a degree in Business Administration. He served as Director of Private Label Sales at Zotos for several years before joining his father at Conair, where he was Senior Vice President of Liquid Sales and Operations. In 2011, Denis was named to the Conair Board of Directors. As the third generation of Rizzutos to hold a board position, he is an integral part of both Conair’s past and its future. Denis is a member of the Board of Trustees of the Promise Fund, which is a part [...]
Clive Svendsen, PhD Clive Svendsen, PhD did his pre doctoral training at Harvard University and received his PhD from the University of Cambridge in England where he then established a stem cell research group before moving to the University of Wisconsin in 2000 to became Professor of Neurology and Anatomy, Director of an NIH funded Stem Cell Training Program and Co-Director of the University of Wisconsin Stem Cell and Regenerative Medicine Center. In 2010 he moved to Los Angeles to establish and direct the Cedars-Sinai Regenerative Medicine Institute which currently has 15 faculty members and approximately 100 [...]
Edward (ED) J. Rapp Ed Rapp retired from Caterpillar Inc. in July 2016. Prior to his retirement, Ed was a Caterpillar Inc. Group President. During his time in the Caterpillar Executive Office, he led Resource industries and Construction Industries and was the company's CFO. Rapp has more than thirty-seven years of global experience and has lived and worked in the United States, Africa, Europe, and Asia. Rapp's career was cut short when he was diagnosed with Amyotrophic Lateral Sclerosis in late 2015. Ed serves on the Executive Committee of ALS Finding a Cure and is the Chairman [...]